Medical Madness

I grew up in the medical system. For those that don’t know this about me I was born with a birth defect that meant I had my first corrective surgery at 3 months old and my 50th right before my 18th birthday. There have been a few others since then but the bulk were in my childhood. I’ve depended on doctors and medicine my entire life. Honestly never was taught to question them or their orders.

As I have grown older and run into periods where I suffered consequences of some of those orders I’ve begun to wonder if the doctor is always right. For example when I received the COVID vaccine and subsequently suffered through 3 months of full body hives that the doctors swore couldn’t possibly be a side effect of the vaccine I was itchy, angry, and pretty sure the medical community was full of morons.

I find myself sort of here again. My middle child and his wife question EVERYTHING. As I ask questions and find myself dissatisfied with the side effects of multiple rounds of antibiotics and steroids I grow increasingly more curious about their perspective on things. And how to balance that with conditions I have like Hashimoto’s and hypothyroidism. And dysfunctional ears and sinuses that periodically, like now, just flat refuse to cooperate.

I left on vacation with an ear infection. My second in a month. Though I completed a full ten day round of antibiotics while on my trip I came back with a double middle ear infection, RSV, and a sinus infection. Was put on a different round of antibiotics when I got home, given a steroid shot, and oral steroids. The antibiotics have upset my gut. The oral steroids keep me up at night and make me angry at everything and everyone. I’m sleep deprived and cranky. By now I should be getting better but woke up with the room spinning. Like WTF.

Where is that line that we trust doctors or we say nope this isn’t working and I have to try something else? How does someone like me with all kinds of complications wean myself off of depending on doctors? One of the things pressing on my mind is the shingles vaccine. I’m not quite at the age for it yet but I had HORRIBLE chicken pox as a kid and I’m a prime candidate for shingles. But after the reaction I had to the last vaccine I let someone put in me why on earth would I sign up for another? But I know from seeing people around me go through shingles that those can be excruciating too. Which is worse?

And even if I did figure any of it out and think I have a plan then the damn insurance company would weigh in and say NOPE you can’t have that drug. Perfect example is my thyroid medicine. I was stable on one drug for over five years. But my insurance changed and they wouldn’t cover it. My body doesn’t respond to the one they do cover and even though we switched me back to the good one by paying out of pocket for it it’s now two years later and we still haven’t gotten my thyroid back under control from having been off it for 9 months. Why the hell does insurance get to dictate what we take if patient and doctor have determined that one medically won’t work?

It’s all madness. Just fiscally driven madness where money is most important and we are secondary. There’s my brain dump for the day. šŸ˜‰

Blessings y’all. – A

The Ugly Side of Moving

I’ll preface this with I am well aware that I am beyond blessed. The manner in which all the pieces of the current season of life fell into place is nothing short of God’s grace. But for someone with anxiety being in a constant state of chaos has a price.

My sweet husband keeps telling me ā€œit’ll be okā€. Along with ā€œwe’ll get thereā€ and ā€œit’s not a raceā€. What I can’t convey, what I don’t seem to be able to put into words, is that living in constant chaos makes me feel unsafe. I have not one place – at home OR at work – that I can get a deep breath. Ironically the only place that is ā€œnormalā€ right now is my truck….and being in it as much as I have been lately is very not normal.

At work the pressure is unbearable. My own relentless self expectation to not let anyone down who is counting on me on top of what’s flowing downstream because of trying to get an entire office moved left me in my office crying today. When I come home there is something that needs my attention or to be put away every where I turn. Sheer exhaustion means I break, drop, or misplace almost everything I touch. Never mind accuracy at what I’m attempting to process at the office. Tim had to go tonight to work on the old house so it will be ready to be put on the market. In my efforts to get SOMETHING productive done I managed to dent the drywall and break one of my favorite lamps in the space of 30 minutes.

My brain feels like what is left of one of my favorite lamps.

Tim keeps telling me to relax. Trying to explain to him that my mind won’t LET me relax when everywhere I look there is something that needs to be done is a concept that doesn’t register with most people. I know, logically, that moving is probably one of the most stressful things we do as an adult. I have moments where I can catch a glimpse of what life will be like if we ever get to the other side of this mountain. But lack of sleep and being in a constant state of chaos and overwhelmed is robbing some of the joy that I think I should be getting from this. I come across as angry when I know I’m not. It seems to be the only emotion that is coming out with any regularity.

Tim says he can fix the dent in the drywall. And I have another lamp. And work will always just be work. Just wish I could relax, get some more sleep, learn how to leave the piles at work and at home without the doomsday feeling….and most definitely I am never moving again. Ever.

Blessings y’all – Amy

When Did It Change?

There was a time in my life I would have said I thrived on succeeding under pressure. Grandpa in the hospital? I’d put my head down and do anything I could to handle it for my grandma. Husband in kidney failure? Me again. I don’t need any help – I’ve got this. World off it’s axis at work due to it being the busy season? Sign me up. You can count on me and I won’t let you down no matter what.

My counselor says it’s cause I had to learn how to survive at a young age. But also that it is driven by an obsessive need to prove myself good enough. Good enough for who? No idea. But we’ve come to the conclusion it drives me in everything I do. And I use the word drives because it’s currently driving me off the cliff in terms of my health. So when did that rock solid ability to handle anything start to change? When did my body start to rebel and my mind sit and spin at night? Hours and hours of tossing and turning and having conversations in my mind about how I would’ve, should’ve, or could’ve handled something. When did I become unable to rearrange the living room without validation from an outside source that it looked okay for Pete’s sake? I can’t even pray without wondering if I’m “doing it right”.

My best guess would be when my world upended a few years ago and I looked around. (Reality is it’s probably part of aging.) No one needs me anymore. Not in the protect me from the storm put food in my belly and a roof over my head kind of way. I ceased being a wife when Fred died and I got downgraded in the mom department when the kids grew up. With that came the absolutely mind bending truth that I had no idea who I was outside of those things. A realization I’m guessing most women come to at some point but still. That period in my life drove me to my counselor and the things we have unlocked have made it difficult to go back.

These days the doctors are working tirelessly to figure out why I can’t sleep. Why the weight has not crept back on but leaped back onto my body. Why I ache in my shoulders, neck, and back constantly. Food sensitivity tests, genetic tests, blood work, you name it. I’m being asked to invest time in myself. To “let go” more. How does one do that? How does a stress addicted workaholic with a need to prove herself to anyone and everyone do that exactly? Question of the day right there….

I find myself wondering what life will look like in 5, 10, or 20 years. Am I prematurely aging myself because I can’t rewire 40 year old programming? Am I working to live or living to work? Can I really see myself retiring and not facing the grind everyday? Are we doing all the things we should be doing to get ourselves where we want to be in the next few years? Geez – I’m even starting to give you an example of the hamster wheel in my brain.

I have the surreal moments these days where I look at my life from a 30,000 foot view and can’t find the words to tell my kids how proud I am of them. To tell my husband how lost I would be without him. To allow myself to fully lean in on him (or anyone) and just let them carry me for a little while. When did being able to survive massive doses of the crap life deals out become debilitating instead?

The short answer is I don’t have any answers to any of these questions. I suspect there are women (and men) out there who can relate. For now I just keep plugging at the tasks the counselor and my doctors have given me hoping that some or all of it changes before too much more damage is done. I feel like an imposter going through the motions of life instead of being able to sink in and enjoy the beautiful things God has given me.

If you can relate, shoot me a note. If you have advice, I’d love to hear it. Words of encouragement that this is all temporary? Bring it on.

Blessings Y’all – Amy

Balance or Boundaries?

This is a topic we have been exploring in counseling the last couple of visits and one I’ve taken my time with my thoughts before putting it here. Anyone who knows me I struggle with giving anything less than 1000% to everything – almost always at my own detriment. Work is a perfect example. When the counselor found out that I come home, after working all day, and the first thing I do is check my work email when I walk in the door it was a red flag. Same with being tied to the phone over the weekend and when on vacation. I have an unhealthy obsession with email. There. I said it. And coming to terms with that has taken more work than I ever thought it could.

“You can’t have balance without boundaries but you can have boundaries and still be out of balance.”

Let that just sit there for a minute and marinate. What is balance in today’s world? Where is the line between a healthy balance and the attitude of “not my job”? I’m old school – the “40 hours and that’s it” or “not my job” attitude that is so prevalent in most work places makes me slightly insane. Yet – do those people have it right as far as having a healthy work life balance? Is it either black and white or is there a lot of gray somewhere between?

I’ve recently changed my work schedule to allow Tim and I an extra 45 minutes before the alarm goes off. I’ve been at it for three weeks and it still feels like I’m doing something wrong. Like that 45 minutes is shorting work somewhere along the way. And being honest I’ve already slipped into not being as diligent with my end of day out time. But that guilt is still present.

Jumping off of work for a second – what about in relationships? Extracurricular activities? It’s interesting looking back on the kids’ childhood in that light. It came very easily to Fred and I to put boundaries on family time and not fall into the club sports/insane schedule lifestyle that rules so many families today. We felt strongly that (while there are a few exceptions) statistically the chance of a child’s’ post childhood success with any sport or extracurricular was slim while the investment in time with them as a family would have lifelong benefits. Why did that boundary come so easily and without a second thought but all other boundaries I feel like I’m letting someone (everyone) down? Relationship boundaries are very hard for me. Tim comments all the time on those that I keep close despite that offline that make me more than a little nutty – he doesn’t understand it. For him it’s black and white – if you are doing things that make him unhappy/hurt him you aren’t part of his world. I’ve learned a tremendous amount from my mother in law about navigating the world of adult children and their lives and invisible boundaries adult kids put down.

All this to say – where do you have balance in your life and is that because of conscious boundaries you’ve put into place? Where could you use more boundaries to achieve balance? Honestly want to hear thoughts!

Blessings y’all – Amy

The Power of Getting Healthy

As a nation we spend our time running from one activity to the next – keeping our calendars so full that we never catch our breath – and the consequence of that is shoving every emotion and every thing we need to deal with on a shelf until the shelf, well, breaks. Most often breaks at an inopportune time that blows your life apart. When things erupt that trigger some emotion we find someone or something to blame it on so that we can move on without digging into the feeling. In the narcissistic society we live in it’s always someone else’s fault – even in situations we ourselves created. We cut people from our lives who push our buttons or make us feel more than we want to.

I know because I’ve done it. I learned it from my family and I taught it to mine. We tell ourselves it’s because they will “never” change and we “just can’t” handle them anymore. In reality it’s because we have our own growth to do it and THAT work is simply too hard. That work is uncomfortable. That work may fracture relationships that we shouldn’t have been in to begin with. We tell ourselves it’s the best thing for our family….in actuality we’re perpetuating the cycle. We’re teaching our kids to do the same running from instead of dealing with as we learned.

The thing is? When you do the work…when you find a doctor, counselor, mentor who is actually really qualified to help you…ooohhh let me tell you. That place? That healthy place where you can tell someone right then when they hurt your feelings or have a conflict? THAT is gold. That is a healing place that if we all learned how to find there wouldn’t be these hairline fractures under all our feet that is dividing our country.

The great part is that work also heals relationships. It puts people back in your life that those old voices were keeping away. It allows you to see people for who they are not for who/what all the history told you they were. THAT work takes away all the broken and clogged mental filters and just brings back clarity and sunshine.

It’s not a magic pill. It’s not an overnight change. It’s always a work in progress. As much as I’ve learned about myself in the last two years I still have days I log onto the counseling session in tears because I can’t unravel the complicated threads of my mind. But, you see, those threads don’t get nearly as tangled as they used to. I have tools now that I can use to help me come out of the dark places. I have the power to choose what I allow to rattle me and when I say “so what?”.

That is the best part. The power of getting healthy is that no one else ever has the power over me again. No one else has the power over my feelings. The power to make me feel small or like a bad person. Getting healthy means I know who I am, what my strengths and weaknesses are, and who I will and won’t allow into my healthy space. It allows me to cut through the bullshit games and be great when I know I’m where I need to be.

That’s the place I want to be in this second chapter of my life.

Blessings y’all – Amy