health

Medical Madness

I grew up in the medical system. For those that don’t know this about me I was born with a birth defect that meant I had my first corrective surgery at 3 months old and my 50th right before my 18th birthday. There have been a few others since then but the bulk were in my childhood. I’ve depended on doctors and medicine my entire life. Honestly never was taught to question them or their orders.

As I have grown older and run into periods where I suffered consequences of some of those orders I’ve begun to wonder if the doctor is always right. For example when I received the COVID vaccine and subsequently suffered through 3 months of full body hives that the doctors swore couldn’t possibly be a side effect of the vaccine I was itchy, angry, and pretty sure the medical community was full of morons.

I find myself sort of here again. My middle child and his wife question EVERYTHING. As I ask questions and find myself dissatisfied with the side effects of multiple rounds of antibiotics and steroids I grow increasingly more curious about their perspective on things. And how to balance that with conditions I have like Hashimoto’s and hypothyroidism. And dysfunctional ears and sinuses that periodically, like now, just flat refuse to cooperate.

I left on vacation with an ear infection. My second in a month. Though I completed a full ten day round of antibiotics while on my trip I came back with a double middle ear infection, RSV, and a sinus infection. Was put on a different round of antibiotics when I got home, given a steroid shot, and oral steroids. The antibiotics have upset my gut. The oral steroids keep me up at night and make me angry at everything and everyone. I’m sleep deprived and cranky. By now I should be getting better but woke up with the room spinning. Like WTF.

Where is that line that we trust doctors or we say nope this isn’t working and I have to try something else? How does someone like me with all kinds of complications wean myself off of depending on doctors? One of the things pressing on my mind is the shingles vaccine. I’m not quite at the age for it yet but I had HORRIBLE chicken pox as a kid and I’m a prime candidate for shingles. But after the reaction I had to the last vaccine I let someone put in me why on earth would I sign up for another? But I know from seeing people around me go through shingles that those can be excruciating too. Which is worse?

And even if I did figure any of it out and think I have a plan then the damn insurance company would weigh in and say NOPE you can’t have that drug. Perfect example is my thyroid medicine. I was stable on one drug for over five years. But my insurance changed and they wouldn’t cover it. My body doesn’t respond to the one they do cover and even though we switched me back to the good one by paying out of pocket for it it’s now two years later and we still haven’t gotten my thyroid back under control from having been off it for 9 months. Why the hell does insurance get to dictate what we take if patient and doctor have determined that one medically won’t work?

It’s all madness. Just fiscally driven madness where money is most important and we are secondary. There’s my brain dump for the day. 😉

Blessings y’all. – A

Another Goodbye, A Closing, and A New Year

This one has been bouncing around in my brain the last few weeks and I’ve been trying to sort through so many emotions. Figure I’ll sort it out here like I always do lol. The Irving house finally found its new owners. About a week ago another tumor took our sweet Paris. And inexplicably a new year is upon us.

We signed the papers on the Irving house four years to the day of when I unpacked the last box, hung the last picture, and posted the before and after video of the renovation from moving into Turtle Summit. Funny sometimes how God’s timing works. I’ve been trying to put my mind around the emotions there, cause there are some, but can’t quite get there. When I reflect back on who I was then…man.

Four years ago I was so angry. So tired. So overwhelmed. So afraid. If I dared to crack open one of my prayer journals I can almost promise you those prayers read something like “give me my life back” or “rewind the clock”. My children were leaving home, my husband was gone, and I had absolutely no idea who I was. And quite frankly I was crazy. Out of my mind flipping crazy. I look back on that person and wonder where she came from and thank God every day that he put the right tools and people in my path to get me through.

As I look around today? My list of blessings is as overwhelming as that list of pain and sorrow was. A home I never could have dreamed this small town girl would ever have. A man I adore who loves me beyond measure. A job that challenges me and pushes me to keep growing even when I’d like a minute to breathe.

Last weekend we said goodbye to another of our fur babies. She was older but we weren’t ready. She had a tumor in her ear that they couldn’t promise us wasn’t in her brain. She was in pain and not herself. We kept the promise we made each other not to prolong our babies lives for our own inability to say goodbye. But less than three months after losing Hope it just made the grief hole rip open again. The energy in the house has shifted again and the three remaining girls are tying to find a new rhythm. They are very clingy to us and hate when we leave the house.

Tim and I’s word for 2025 is “intentional”. So often we find ourselves at the end of a week, month, or year having just responded to all that came at us instead of acting intentionally towards our goals. We want to work on the goals we have set and live life on our terms. I think some of that is a result of seeing what we accomplished when we set our mind to it with the house. Not sure. We just know that as we heal from some of what 2024 took from us and embrace some of what it gave us we have big plans.

I am waking up at night with my mind and my heart racing. Anxiety coursing through me that I can’t identify. I thought it was the house. But with that settled not sure what it is. Work is out of control busy so maybe it’s that. But I know that if I turn it over to God and just lift it in prayer it’ll resolve itself in time. Just takes the one thing hardest for me – faith.

What are you reflecting on in as we close out 2024?

—Amy

Real Effects of Stress

Ever had your mind spin so much when you lay down at night that, despite complete exhaustion, sleep eludes you? How about a jaw ache from clenching your teeth subconsciously for days on end? Dry skin, thyroid completely blown out of whack, digestion a joke, tension headaches, and a masseuse unable to relax the knots in your neck, lower back, and calves? How about massive weight gain despite very little of what you eat sticking with you? Tears that flow without warning and the inability to make decisions that previously you wouldn’t have even had to think about?

I wouldn’t say I am under much more stress than I ever have been in various times in my career but something about getting older (or maybe living with someone who points out what’s broken) is giving me fits. When I started to resent the effort it took to prepare to travel and recover from travel we knew we had an issue to address. We’ve been meeting with different doctors now for a few weeks and have some plans in place but at the moment my body is still being uncooperative.

For the first time in a long time this last week I napped. More than once. I had a couple of nights where I actually achieved 6-7 hours of sleep (my average is 3-5). My jaw stopped aching and I was able to say “I want to do that” not “we can do whatever you/they want”. As we got closer to returning to land the restless broken sleep returned and the jaw ache returned. So my options are to move out onto a body of water (!) or figure out how to better process and handle stress.

Seeing a break in the physical symptoms of stress has made them so much larger than they have been in the past to me. As a survivor, both from a birth defect that left me in and out of hospitals my entire life, to an abusive childhood, to being a widow at a too young age I barely recognize anymore what my brain does to be body. It’s just part of life.

Apparently…that is wrong thinking. I have four great doctors in my corner now that are determined we will turn this ship around. Tests show I have Hashimoto’s and my thyroid is not getting enough medicine (which makes sense when you have a stomachache 5 mornings out of 7). Armed with a supportive husband wiling to try anything – including sleeping with music on and a diffuser going – to help me sleep we’re working on sleep hygiene. TV being off and phones put down a few hours before bed. Taking a sleep apnea test next week to make sure I’m getting enough air. And as much as I love reading I have to switch to a) doing it with a real book not a screen at night and b) not doing it while I eat.

We are going to have to do an elimination diet to figure out what else besides gluten has my stomach so PO’d since the gastro dr ruled out anything other than what we already know I have. That will be harder on my husband than me because it involves lot more restrictions than he already endures with his diabetes. Did I mention he hates veggies? Together we’ve decided to focus on sleep first then add this next layer.

Both Tim and I have adapted the “whatever it takes” mentality. We are less than a decade from retirement (we hope) and for me to enjoy the post working years I have to be healthy. I have to learn to prioritize a work life balance. To take ten minutes in the morning to wash my face or pack a healthy meal for lunch. To take moments during the day to practice the meditation exercises both the doctor and my counselor have given me. To silence the constant barrage in my head of did I do enough, work hard enough, or am I enough? To find the ability to say “NO”.

I suspect it also means a ramp up on my writing as I find it very therapeutic. But I am going to maintain my “when I feel called to write” mentality instead of my “have to” list. I have been promised that with sleep will come energy and mental clarity. With energy will come exercise and enthusiasm for my garden, my home, and my cooking again.

If you have any yoga or meditations apps/programs you recommend send them my way. And all the prayers you can spare.

Blessings y’all – Amy

Focus on the Fruit

It’s no struggle to those in my inner circle that life is pretty much kicking my behind right now. Work is the toughest it’s been in my 12 years of working there. I leave frustrated, angry, and exhausted more days than not. Sleep is elusive (it’s 3 am right now) and there is something going on with my health that they haven’t quite figured out yet. If it wasn’t for Tim, my kids, my dogs, and my friends I’m not sure I’d be sane. Tim is quite literally my refuge each and every day – Tuesday I got out of the truck and walked straight into his arms crying. Those kinds of days can wear you down like nothing else.

Every now and then I get an urge to turn on a sermon and it gets stronger until I listen to it. Tuesday night there was no ignoring it. I don’t search for a specific one – I cue up the church I follow and hit play on whatever shows up first. As always, it was a message that I guess God knew I needed. It’s happened before but it never fails to amaze me.

The sermon was entitled “Don’t Tap Out, Tap In”. I’ve listened to it twice and have gotten something different out of it each time. The main thing being that in wrestling “tapping out” means “ok, I’ve had enough, let me up”. In life, as it wears us down we are inclined to tap out. Throw up our hands and say “I’ve had enough of _______(insert an area of life that is wearing you down)”. Being honest – that has been on my mind a lot lately in regards to work. Have I had enough? Is the stress on my body slowly killing me and taking me too early from my family? Am I happy? Am I fulfilled? Am I letting it take too much of my spirit?

Heavy questions. The pastor goes on to say that in life we have four things….fight, fire, a fence, and the future. The Devil is a quiet serpent that sneaks into those areas and moves us away from God and away from the life He has planned for us.

I live my life in a fight. Fighting to be good enough, fighting to do everything for everyone, fighting to protect my bosses bottom line due to a loyalty that runs deep, fighting to keep wayward employees on path and in processes that have been proven to work, fighting to not disappoint anyone….the list is long. That fight, and the anger it produces, keeps me from focusing on the fruit in my life. God knows how much more fruit I have in my life right now that I have had in years. I have a man that loves me, I have a home I love, I have children who are grown and make me proud every day, I have a new family that supports me in every way, and I have the ability to travel and to see the world…THAT list is long too.

But most days? What I talk about, what consumes me, is the fight. How I didn’t get enough done. How I failed to enforce processes that protect the company. How someone else’s mediocrity created more work for me and drove me crazy in the process. What I hear in my head over and over is I didn’t fight hard enough and thus I failed. I think the reason this sermon pulled me up so short is finally realizing that. Why am I allowing anything to steal my joy? Even a job I’d tell you on my worst days that I still love.

Enter the fence we all have. Otherwise known as boundaries depending on who is speaking. What I have to do now that I have had this realization is erect a fence. A TALL electric and barbed wire lined fence. Turn my eyes to the future and what I want from it and use that to put bull dogs along the fence and end the fight.

Here’s the hard part. Can I do that? Can I change course on 45 years of being a people pleasing perfectionist? I can’t help but think if God wanted me to receive this message and have these realizations that there is hope that I can. I know it’ll take a lot of work. It will take mentally slapping myself over and over again until I get it. It will take probably disappointing people who count on me but hoping they understand in the long run I’m better healthy than I ever could be as I am now. It’ll take prayer and a lot of faith in God’s plans for me.

If you know me, if you are close to me, don’t hesitate to tell me when the fight consumes me that I need to focus on my fruit. Kick my butt if you have to. It’ll take my village to change these habits but I need to change them. I can’t keep on as I am. Humans need sleep and food to be healthy and happy.

Blessings y’all – Amy

Over A Cliff

It’s no secret I’ve been in deep period of pain and self discovery the last couple of years. Long overdue grieving for the loss of my grandpa and my husband. Staring down the question of “who am I” when not defined by titles like mother or wife. I am damn proud of how far I’ve come. I haven’t done it alone and I know that. This very outlet had been part of the journey.

Lately I’ve been restless. Feeling disconnected from my faith. Questioning the growth. Losing my identity as an independent a bit as I’ve become part of an “us” again (def no regrets there!). I’ve recently begun listening to an audio book that has provoked some deep thinking.

I had an opportunity this weekend to share some of the feelings bubbling up with someone I trust implicitly with my thoughts. Between those conversations, my book, and what I believe is answered prayer I finally think I’m understanding where the restless is coming from.

I’ve reached a point in self discovery I could choose to be satisfied. OR this cliff I am standing on….the one that I can’t see ground below because it’s dark…I could choose to go over it and dig deeper. To return to the faith the distractions of life are pulling me from and hear what God was guiding me towards. I’ve done a lot of work. But I’ve also just stuck some of the feelings that are too painful in a box and put them on a shelf – compartmentalizing as the counselor calls it – and hoping to forget about them.

I kid you not….as I am writing this my bible app sent me this verse. Does it get any clearer than that?

It’s time to go over the cliff. To truly forgive those who have caused me pain and to forgive myself when I haven’t been the person I wanted to be. Yesterday is past and can only continue to hurt you if you can’t let go of it. It’s time to open the box, sort the feelings, and finish the journey. It’s time to love myself enough to finish the healing.

For those who have held my hand this far – I love you. I wouldn’t be on this planet today without you.

Choose you. Choose to believe that if you go over the cliff God will catch you.

Blessings y’all – Amy

All or Nothing

My counselor says that I am bad at seeing life as all or nothing. At LIVING life as all or nothing. Examples. Life is all good or it’s in shambles. I have to be perfect at my diet, exercise, work, etc or I am a failure. I have to be the best at how I do everything or I am letting down those closest to me. I have to love the best and do everything for everyone no matter what the effect on me.

Two years of counseling later and I still struggle with it. But have learned the signs of the rabbit hole enough to *sometimes* prevent myself from falling down it. Or at least enough to prevent myself from exhausting myself trying to be everything to everyone and putting my own needs last.

Here’s is the thing about all or nothing. That’s the same as black or white. But! Life is shades of gray. It’s messy and smudgy and requires a tree to bend in the wind lest it break.

It’s being patient when you’ve dieted good all week but eat a plate of Mexican food on Friday night. Diet isn’t over – you just had a treat. It’s getting back on the exercise plan after a week of coming straight home from work and watching TV and having popcorn for dinner because work is insane. It’s forgiving those closest to you for being inconsiderate and hateful instead of compassionate and kind. It’s giving someone the benefit of the doubt who you have only seen at their worst.

Living at extremes isn’t a healthy place for me. Living day in and day out terrified of my world changing caused me to hold on too tight. Finding balance, finding the gray, is still a daily challenge. Keeping a brain that is used to handling the worst life has to offer from going first to the dark place and never thinking of a positive alternative is hard as hell.

But learning that you are never too old to change? Definitely worth it.

“Great things happen to those who don’t stop believing, trying, learning, and being grateful.”

Never stop learning y’all. Never stop believing in yourself. In humanity. In the power to change yourself and that better things are on the horizon.

Blessings y’all – Amy

Dawn of a New Day

My insomnia lately has been epic. Just epic. I can’t decide if it’s because I have too much energy to burn or if it’s too many new and exciting things going on in my life that my mind just won’t rest. Whatever the reason I found myself awake to catch a completely gorgeous sunrise out at sea this morning and I was mesmerized with God’s stunning artwork…

The magnitude of the new days that are breaking in my life always circles back to the blessing that God has gotten me through the dark and the sun seems to be rising on the next chapter. Light is shining into all the dark places where pain has hidden and with it comes joy. Light that on the hardest darkest days I didn’t know would come again.

Psalm 143:8 says: Let the morning bring me word of your unfailing love, for I have put my trust in you. Show me the way I should go, for to you I entrust my life.

Even when I wasn’t very religious, watching the sun come up and bathe the world in light had the power to stir me. Reading that scripture now, and understanding it to the very depth of who I am, it is a promise that each day God will sustain me and always bring back the light no matter what harshness this ugly world brings. It gives me hope that He will fulfill the same promise to each person in my life that I love and pray for.

May He bring blessing to you today as you spend long weekends with friends and family. Safe travels home to all. – Amy

Another Trip Around The Sun

43. Who knew? For a girl that literally thought when she was 18 she never would see 30…43 is like getting bonus years.

In all seriousness, some of you know (but many don’t) that this time last year my depression was so bad I would have told you I didn’t want to live to see another birthday. I was locked in a battle of wills between a past I couldn’t let go of and a future I didn’t like or want. The result was a paralyzing soul crushing “there is no point” place. Only the thought of leaving my daughter with no parents on this Earth kept me here. And I’ll tell you openly there was more than one day even that was a slim slim thread. The darkness and pain had life so unbearable I honestly would have rather have been dead to have relief from it.

Many toss around terms like “crazy” or “nuts” for covering their own inability to understand the effects that depression, anxiety, and suicidal thoughts have on a person. It is so much easier to judge than wrap your brain around how terrifying it can be. “Just doing it for attention” or “all talk” are two of my least favorite pass offs I hear when someone is talking about someone else’s suffering. It is because of that type of non-understanding that those who suffer from those illnesses push them down. Hide them. Keep them away from the people who love them and need them despite the voices in their head telling them all those people would be better off. It’s those types of judgements that led the great Robin Williams to leave us instead of face his fan’s judgement if he told anyone how unhappy he was. Despite how far society has come in understanding mental illness it has SO FAR to go in grace, compassion, and kindness for those who suffer.

Through so much love and support this last year – support coming from places I didn’t expect – I am deep in counseling and medical treatment of a disease I will never be rid of. It was a genetic “gift” from both sides of my lineage and one I finally understand I’ll never escape. I can manage it. I can ask for help on the bad days. I can watch for signs I’m hurting the ones I love in my own pain. I can be open and honest in my struggle so someone else will make the right choice in that darkest hour.

But I’ll always be a little bit broken. God made me that way. Perfectly imperfect! I may not know or understand His purpose for me every day but right now I think some of it is to use my voice to share my journey so maybe others have a shorter path to recovery. Life is messy. It’s ugly. Feeling alone and hurting in the agony is excruciating.

As I reflect on starting another year on this planet I can tell you I have hope. I believe God has me exactly where I am supposed to be. I have faith each of my children are firmly in His hands and that God can protect them far better than I can. I have peace that Fred and I raised good kids who will put good into the world. I have hope there is someone out there for me to share my life with. Not someone to replace my Fred – there is no replacement. But someone who can love me understanding all that I have been through before him. I have God protecting me and the ability to talk to Him daily for probably the first time in my life. I have a job I adore that supports all the changes this past year has brought me and pushes me to follow through with taking care of myself. I am grateful that I am still here. I have far to go but from where I was a year ago? Sheesh. I feel lucky to be alive.

Ok.. enough pontificating. Birthday celebrations about to happen.

Peace y’all. Love each other. Be kind. Life is precious and short. Make every moment count. ❤️

Let’s Get Sailing!

It’s time. It’s happening. The crew is in stateside and in quarantine. The CDC has finally backed off the industry. The ships are in place. CRUISING IS BACK.

If I didn’t already have a summer vacation in place as an alternate because I had no idea what the cruise industry was going to be allowed to do I would be on that first ship sailing on July 3rd. I would be kneeling at the end of the gangplank worshiping my favorite form of travel. There would probably be tears.

Some of you think I am kidding. Those of you who really know me? Know that I am absolutely 100% not kidding. Ships being shuddered to a stop this last 18 months has impacted my health. My mental health.

You see some people travel just for fun. I travel to keep my sanity. I operate daily on a breakneck all out pace. My mind never stops and never gets a break. When I step on a ship I stop. Just full on stop. I sit on a bar stool (geez that sounds bad) at my favorite bar either with old friends (my last cruise was literally booked to be with two of my favorite bartenders before they went on vacation) or with people who will be friends by the end of a week. It is so polar opposite in behavior it’s sinful in it’s blissfulness. Factor in on top of that having someone else cook and clean for me for a week. And my astrologically signed Cancer heart being surrounded by water for a week? PARADISE.

So to say I’m excited about those beautiful ships setting sail? Just a little. I have massaged what is left of my vacation time nine ways to Sunday to see if I can fit in a cruise between now and my Thanksgiving cruise. (Did I mention I scheduled one of those as soon as the industry was green lighted?) Unfortunately I can’t make an extra week work but I am counting the days until Thanksgiving. Meanwhile I’ve checked in with the friends who became family (Carnival crew members) to see who is landing on which ships so I know who’s neck I get to hug first.

Let’s sail away people!